YOU ARE NOT ALONE
Our primary goal is to be a support group for families affected , by providing them with accurate information and a deep understanding of the condition.
Your child has been diagnosed with syndrome. While this is difficult news, we’re so glad you’ve found us. We have a lot of information to share with you. We are here to help you. When you’re ready, there is a whole community that understands what you’re going through, and will be here to provide guidance and support throughout your journey.
SEE A GENETIC COUNSELOR
Why it’s important, what they can do for you, and how to fine one.
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Accessing Services
Talking to and sharing a new diagnosis with family, relatives, friends, and others.
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Your child’s right to early intervention and free appropriate public education.
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